Want to cry. my life is knakered

[Beamish]

Bloody hell again.....I have had just enough alcohol for this thread to yet again impact on my soul and to add what is probably just more drivel. The prognosis isnt good, its pretty far from good but i dont think I have met a luckier man. Imagine how many poor b8stard are going through this type of hell without a partner, I whinge and moan about all sorts of irrelevant sheeiite but come back to this planet when I read the updates on this post . Like I have said before, my old man has MS and it makes me think of his suffering and the little I can do. I would gladly ride up to spend some drinking time with you and the missus. I would love to share a fat smoke as well but alas the work testing program scuppers that avenue of pleasure.

[Zer0Zer0]

There are approximately 5000 people in Britain at any one time. with motor neurone disease. about 1000 die from it every year, and no one has to cope with this terrible disease alone, that would be impossible.even if they are single there are excellent post diagnosis care teams, and voluntary orginisations to see to their needs.
But a close loved one or partner that is willing to take on the immense burden of looking after anyone with a Terminal illness, is worth their weight in gold. Having Norma to care for me will make a big difference in the quality of life issue of my illness, without her I would probably opt for an early Exit.
This awful set of circumstances i find myself in affect her just as much, if not more so than me, she is the one that will have to watch me shrivel up and die before her eyes, and be strong enough to continue on after it is all over. I am saddened more by this than i am about being ill. and thoughts about sparing her that trauma have crossed my mind, and if she knew i have been contemplating thoughts of that nature..
she would kill me!!
so it's back into Hospital today, a week of more tests, and meetings with the care team.
Many thanks to all for your continued support, your messages of encouragement mean so much to me.
I'll be back...........
cheers the noo.........Marty.. :wink2

[Stratman]

Hadn't read this thread before now. You seem to have a loving and supportive partner and that must be a comfort in a terrible situation. All the very best to you both.

[Pete.L]

Marty Said friday

im off for a Dram or two and a couple of big stinky fatty's, then a little loving with the Mrs whilst i am still able

Well it 's Monday now and I know you have to go in for more tests so I'll not ask for a report on what happened after the stinkin fatties Some things should remain private even if the doctors think you need no modesty at all.
Sorry to hear the worst has been confirmed Marty. It's still not going to stop us oggling over the next bling machine to be posted on here or laughing at the next idiot who f*cks up his cam timing but it certainly brings us all down to earth and makes us think for a little bit.
Keep making us think!
Good luck with this weeks tests Marty. Stick one of those needles in a Doc for me.
Pete.l

[Zer0Zer0]

I'm Baaaaaaaaaaaack.
all the tests are over, and i have concrete confirmation that it is indeed motor neuron disease, and the care team has swung into action. I have been measured up for a custom made wheelchair because i am so tall,
I have a sippy cup ,a high chair, a potty type thing to raise the height of the toilet, a helping hand gadget, and a sponge on a stick to clean my butt, all i need now is a dummy tit, and my regression will be complete.
I am turning into stewie from family guy.
so now I have to attend a clinic every few months for re-assessment .The MND scotland charity will help me with benefit claims etc, and i will get regular visits from the specialist nurse. Norma is in the middle of rearranging the house so i can move around in my chair, and once I am settled we shall be having a weekender type party .BBQ ,Booze, loud music etc, as i wouldn't want to miss out on my own wake.
watch this space for a date.
cheers the noo....Marty.. :wink2

[sirch345]

I'm very, very sorry Marty to hear the confirmation of your illness
In your last report you said they were 90% sure what it was, but (you too no doubt) were hoping by some miracle they'd got it wrong

I hope they don't need to go sticking more needles in you, and giving you more electric shocks when you attend the clinic for re-assessment

No chasing the missus around when you get mobile Well OK just a little bit

Cheers,

Chris.

[Beamish]

I will keep an eye out for the BBQ date and hope nothing gets in the way. Stay strong big fella.

[Pete.L]

So,
have you found out any new mods for the wheel chair yet? It's sounding pretty tricked out as standard but there's bound to be a website with some on somewhere, I hope you're not just going to Dump us as soon as you find one
Time for a bucket list me thinks. Damn! don't you just hate it when the Doctors are right
SO, Whens the party? I remember the pics of the views from your garden you posted just after you moved in and I'm still jealous.
Pete.l

[SILVER ZIPPER]

Anyone know what's going on with Marty.

[Dean O]

Anyone know what's going on with Marty.

damn, was hoping you were posting an update Dave

[kevg]

i'll give him a phone over the weekend and see how things are, i've meant to do it for a while now..

[mwross1964]

Hope to be there.

Mark.

[Seeker 77]

Marty, my original post of "want to cry, my bike is knackered" seems completely and utterly pointless now. i am so sorry to hear of your illness and the changes that you are having to make in your life to cope. I doubt there is anything that i can do to help, but, as with everyone else on here, you only have to ask for help and we will all do what we can to make life easier for you.

All the best buddy,

Mark

[Zer0Zer0]

As you can imagine, all, its been a hard few months. Its Norma by the way, and no he's still kicking or his brain is telling his feet to kick, but they ain't moving.

Martin's back in hospital and has been since a week past Wednesday. Unfortunately he developed a chest infection which, because of weakened chest muscles, meant he couldn't cough well enough to actually expell the infection. It was also discovered that he had a blood clot on his right lung and his lower left lobe had collapsed. So breathing was getting a bit of a problem.

I'm sorry to see that he hasn't posted anything in months, I know his use of the computer has been limited to periods where he felt well enough to get out of bed and sit in his wheelchair. Now I realise he has just been checking his email and thats it.

Things have moved at such a fast pace, I feel like I'm on the back of the fastest bike possible being ridden by Valentino Rossi.

I'd like to say its been a breeze, but that would be a lie. He has now received his electric wheelchair and is already talking about putting a 250cc in it. I know, what use is a 250cc? Surely a 650cc at least to make sure he can get around the corners on his way to the pub.

Yep, you guys are right, if we need to ask anyone of you for help, we will, because at times like these, refusing any sort of help is insane. We are both getting excellent support from the NHS teams, Martin has had all the female nurses on his ward, crying and a few of them have offered to spoon and I think one of them would like to take him home. My family has been great and by this I mean everyone except my Mum who still believes deep down, there is nothing wrong with him and its all because he spent all day at the computer. My sister is here right now, and although we are supposed to be having a bitching session about our dear mother, I felt the need to update you all.

Martin's cousin and her husband are coming around tomorrow, not to visit, but to rearrange my furniture because I've not been able to face it. Ali is one in a million and I know that my sister Janet is going to get on really well with her.

What you all can do though, is visit, come and see him, whether here at the house or in hospital. I've seen so many bikes over the past 2 weeks heading our way and I think are we getting visitors?

I would have loved to have setup the party for this weekend, but recent events haven't given me the time. So for our anniversary tomorrow, I will be spending it with Martin in the hospital, I'm even getting to stay the night. Thankfully he has a side room and I've already got the chair ready to wedgy under the handle.

Take care everyone, I hope I can update you from time to time and maybe Martin will take the time to post, but as you can imagine he has had other things on his mind.

Nx
' :@

[Jbrebel]

Reading that last post has just put a lot of things into perspective for me

Norma-easy to say over the keyboard-but I think you're both doing an amazing job The only word that strikes me is "inspirational"...even though your circumstances are as difficult as they are at the moment I think you're both amazing people and a credit to each other.

I think I speak for everyone when I say we are all thinking about you both.

John